The journey of two CFers

About Me

Hey everyone! Lauren and Alexandria are starting a CF blog about our lives with Cystic Fibrosis and how we became very close friends! :) We will be posting new posts every chance we get so keep checking in! Lauren writes in yellow and Alexandria writes in green/blue. Thank you! <3
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Wednesday, September 2, 2009

Living with Cystic Fibrosis

Living with Cystic Fibrosis is..
But most of all, it's an adventure.
.When I think about everything that I've gone through in my life..It doesn't seem like I have actulley been through all of that stuff..
The hospitalizations,the numerous times I've been in pain,being sick,seeing my friends and family cry.
It's all so much, but all of this stuff is so easy to me, just because of that one gene that got mixed up.
The CF gene :)
Every single CFer out there has their own personality and lifestyle, but we're all the same because of so many reasons.
~We all have great personalities and attitudes.
~We all have inspired at least ONE person in our lifetime.
~We all fight everyday of our lives.
~And we're strong.
We're strong..
I mean, we are the doctors,getting poked with needles,coughing our lungs out,and taking every breath we have for granted.
I think..noo..I know that living with Cystic Fibrosis is a miracle.
Even if there are days when I want to kick CF in the head.
Soo yeahh..
I'm going to get sick
I'm going to be tired
doing my treatments take out almost 4 hours of my day
But most importantly..I can't change that.
So that's why I keep fighing..that's why we all do.
We know we can't take CF away so we just keep doing everything we can to put CF on hold..for as long as possible.


  1. ...and the best way to put CF on hold is treatments and exercise.

    Sorry, I just wanted to add my own ending to your awesome poem :)


  2. Great little poem...very true to all of it!!

  3. You two rock! I am a faithful follower. I Love L.A.!

  4. Hey Ladies -

    I am a mom to a 4 year old girl with CF. I just stumbled across your blog (and wish you had kept it up - I lOVE it!) Anyway, if either of you sees this in the next few days...I am doing a CF fundraiser on Saturday April 10 and I"m gathering blog posts by CF'ers to put around the event area. I'd LOVE to use this post, with your permission! Please e mail me at to let me know if it's ok... thanks!

    Tami Draxler